The BS about Ds. (Down syndome)

“My life will never be the same, I will never be able to work….I’ll just be looking after this person for the rest of my life.” This is what went through my head when I was in hospital.. I was so very, very wrong on so many levels. Yes my life has never been the same. It’s been a big …

Down Syndrome – the Scapegoat

“Down Syndrome, is often the scapegoat for other problems, easy to blame,  and perfect to label.”When Miss Chloe was little (and not so little), I blamed every ailment on Down syndrome.She has none of the big ugly health issues…like heart or bowel etc BUT, gee, she has a myriad of minor, very annoying, mind – messing ones!!Let me explain, Miss Chloe has a …

Disabled work for free

 “Stumble outa bed, get myself fed, catch the morning train, get to work, work all day (with breaks, of course). Finish work, get loads a praise and feel great about my achievements and grateful for being given an opportunity to prove myself!! Does this sound familiar to you? Most of us go through this (or similar routines)  and  this is where …

Work and Disability

“When I talk to young ­people living with a disability about their goals and aspirations … (they) invariably ­include contributing in a workplace, to achieve their goals some ­people may need access to ­support services to be able to get to work, other people may need additional training or study for a particular role. “For others, it’s about ­overcoming a …

We all deserve to be understood.

 ‘it doesn’t matter what people with Ds are called or whether information out there is right or wrong…just put your energies into loving your child’.  I am a member of a few Down syndrome facebook sites – both local and international,and this statement is a very interesting yet concerning pattern, and it is one that is growing.Firstly, I am very capable …

Down syndrome – Lets raise the expectations

OK, OK, I have to put my hand up for this one & admit I have been known to under-estimate Miss Chloe on maybe more then once occasion!!!  But I do like to think I have learned from this!!! From the day she was born, I was determined to do everything in my power to ensure she was the very best …

Disability doesn’t mean denying dreams.

“I HAVE A DREAM!Horse-riding, kombiing through Central Aust, safari in Africa, helping people in need, seeing lots of the world….” Oh hang on that’s MY dream…not my children’s dream…..If there is one thing I find very strange about many people when they have children is they often inadvertently place their own dream and aspirations onto their children. I know my …

Carers stand and be proud

Yes, that means you struggling with your disabled young one and going cap-in-hand to a respite service & being told, there are people out there worse off then you and you should be lucky for the scraps we throw your way. WELL NOOO, I AM NOT GRATEFUL.  In fact not only am I not grateful – I think the Government, …

Ignorant assumptions around Down syndrome

There are times when the medical professionals make my blood boil..with the things they say or assume, when you say your young person has Ds!!!! Today has been on of those times. I had to take Miss Chloe off to s specialist in diet & nutrition. She is absolutely delightful and respectful and informative and heard me when I say “I …

Disability’s winds of change

WOW, WOW and even more WOW!!!! This is the only word I can find to describe my very first forum for people working within the disability field in Melbourne. I was going to say Australia, but told myself, small steps to success & change are best steps…sooo, watch this space in time to come to read about how the winds …