When we have our babies with Down syndrome, we tend to be full of fear for them & us & what sorts of horrible things will happen to them.I made a very conscious decision very early on in Chloe’s life that I wasn’t going to look after her forever. I was told our kids LOVE routine. I HATE routine and …
Inclusion seems to be the answer to everything, but it’s important to remember that just because you include, doesn’t mean you solve the problem. In many cases exposure to the elements, isn’t going to create some new inner self esteem and super powers to overcome fear, and social inhibitions, in’fact it does just the opposite. There is a myth that …
“On the 12th August 1991I faced my greatest fear, head on.” Pregnancy can be a scarey process. So many things to look out for whilst you are caring for, and carrying a living person to term. Now imagine during that process, that the ONLY thing you truly dreaded was the fear of delivering a child with Down syndrome. A …
“Once you stop listening to the little voice inside your head, and remove the fear of losing your freedom, individuality, life as you know it, new career as a permanent servant…. you’ll be fine.” So how different is it really? Specialists? Doctors? Hospital visits? This is not unique to people who have Down syndrome, and can happen …
Miss Chloe and I recently traveled around the world, visiting some amazing places.This is the welcome we received almost as soon as our feet hit the ground in the Land of the Lepricorn. Even before we alighted from the plane, Miss Chloe had started. She has a habit of talking to herself out loud. Not only does she talk to …
This is a story about why I can’t wait for NDIS (National Disability Insurance Scheme) to commence in the land of OZ.Miss Chloe has a Personal Trainer to assist to get her fit and out of the Morbid obesity zone. She trains two times a week and is making really good inroads.I pay for one session and I have a …
IGNORANCE – lacking knowledge or information about something; not educated (Oxford Advanced Learner’s Dictionary) So if this is the definition of ignorance – why is it so many people are offended when some-one says they are ignorant?? I am a member of a few facebook sites specifically for people who love a person with Down syndrome, I never stop being bemused at people who …
I have been off the air for a bit… But you know, sometimes life just gets in the way! it’s funny how when you first have a baby presented to you with a disability, the whole world just orbits around said child and you forget about all the other ‘life issues’ everyone has. As time rolls on and you slot …
Once I recovered from the gut-wrenching, free-falling emotions of having given birth to a baby with Down syndrome, I began to bask in the rosy glow of my ignorance around Down syndrome. “Well at least she will ALWAYS adore me.”She will be my biggest fan & LOVE spending time with MAMA””She will hang on every word I say AND I …
This was the attitude I received from a ‘lovely’ disability officer today when I called to see where we stand in regards to traveling overseas to see Chloe’s only sister, Shannon who lives in Scotland. When I called to find out some Information regards the pension and traveling, I was told that: “The reason I should consider myself lucky is …
