Dear Doctors, ENOUGH!!!!

This is a letter from my book ‘Removing the Fear of Raising a Child with Down Syndrome – Waising Miss Chloe’ .Sadly, it is more relevant today than it was 4 years ago, with the advent of the Down Syndrome blood test imminent in Australia. Please don’t allow Australia, to go the way of Iceland and eliminate a group of people because..well …

There is no cure for Down syndrome

I have just finished watching the public hearings into the Disability Support Pension hearing inquiry and I can truly say that I am speechless! Here we are in the 21st century and still there is so much confusion around Down syndrome. Apart from the bizarre comment from a spokesperson from the Department of Human Services (DHS) – that she could …

The Art of Giving

There are so many ways of giving. We can give our time, our love, presents, donate to causes…the list goes on. But to me, the most generous and kindest way of giving is to give from the heart and to give unconditionally. This is not at all easy to do – although I am sure this is what we THINK …

The NDIS Rollout – More than an inconvenience for too many

As anyone who reads my blogs knows, I am a massive fan of the National Disability Insurance Scheme (NDIS) – once it is rolled out and working properly. What you may not be aware of is that I am extremely nervous about the journey in getting to that point. I regularly mention in the Imagine Better workshop that I see …

The wind beneath my wings

I have recently been presenting workshops for Carers of people with disabilities. These interactive workshops are very casual, yet it amazes me that a large group of people can sit in a room and listen to someone speak for a couple of hours, then get up and leave without connecting with anyone else! However, when you ask people to introduce …

Newsflash: People with Down Syndrome don’t ‘Suffer’ from Down Syndrome

If I could get a dollar for every time someone says, “She suffers from Down syndrome”, I would never need to work again! The fact is in most cases of Down syndrome, it is just an extra chromosome, 21 in every cell. Just like we don’t ‘suffer’ from our 46 chromosomes per cell, people with Down syndrome don’t ‘suffer’ from …